Author Archive

John
Seng

A Never-Smoker With Lung Cancer, And The Point Is…?

Tuesday, May 17th, 2011

The next time you hear that a friend of a friend was just diagnosed with lung cancer, you’re bound to wonder privately or out loud: Was he a smoker or not?

It’s only natural. We’re terrified of cancer, and especially, cancers such as lung cancer which are diagnosed usually in late stage, and oftentimes too late to really do much about it. So we all must hear what we need to hear that, yes, this person was or still is a smoker. Phew! We can again comfortably assign blame to some poor soul who should have known better or couldn’t muster the willpower to quit in time. And we think, I don’t smoke, so I’m innocent.

But increasingly we hear from multiple quarters that non-smokers and never-smokers also get lung cancer. In fact, approximately 10 percent of all lung cancer is diagnosed in persons who never smoked. That inconvenient reality surprises a lot of people. In other words, someone who didn’t have it coming to them just got really bad news, despite his or her good behavior, unlike those weak and irresponsible smokers. Some lung cancer advocates report this aberrance, in an attempt to add accurate perspective on the disease. Even more important, researchers are now investigating the differences between tumor types in never-smokers vs. smokers, and why women never-smokers bear a greater burden of disease.

But here’s a radical notion for you, one that I recently suggested to a group of lung cancer advocates gathered in Denver by the National Lung Cancer Partnership: Lung cancer is 100 percent a disease of innocents. I repeat, innocents.

I put forth the proposition that the lifelong female smoker diagnosed with lung cancer is no more “to blame” for her disease than another woman diagnosed with breast cancer. Here’s why. Tobacco use most often begins in our teen years. Raise your hand if you never did anything stupid as a 14-year old. The Army and Navy once distributed cigarettes free to hundreds of thousands of men to help them cope with battle stress. Tobacco companies handed out free samples on college campuses. I once found a copy of an ad for Lucky Strikes that depicts a doctor extolling the virtues of smoking. The best part is, the ad ran in a 1940s edition of The Journal of the American Medical Association. I framed the ad for my office.

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John
Seng

Winning For Rare Disease Research

Thursday, March 10th, 2011

I learned several weeks ago that I’m to receive the Genetic Alliance “Art of Reporting” Award in June for Spectrum’s work on behalf of The Progeria Research Foundation‘s (PRF) “Find the Other 150”  campaign. I want to publicly thank Genetic Alliance for recognizing this campaign and our commitment to such a rare disease.

Progeria is a rare, rapid aging disease in children and our client, PRF, is working to find a treatment and cure for this disease. As of October 2009, experts estimated that there were approximately 150 unidentified children with Progeria around the world. Spectrum and our global partners, GLOBALHealthPR, teamed up with PRF to launch a global communications effort to find these 150 children.

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John
Seng

It’s Your Wake-Up Call

Friday, March 4th, 2011

Are you or are those you know at risk for diabetes? It’s easier than you think to find out.

American Diabetes Association Alert Day is this March 22. As chair of the National Capital Community Leadership Board for ADA, I’ve deployed all my social media skills to get the word out, and that includes this contribution to The Full Spectrum Blog. (I need to set a good, virtual example, you know, and Spectrum has a great, long-standing relationship with ADA.)

It’s a one-day “wake-up” call asking Americans to take the Diabetes Risk Test to find out if they are at risk for developing Type 2 diabetes. I took the test and fortunately, my risk is low, as you can see in my report here. (There’s even a button to click to listen to the risk report.)

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John
Seng

Own Up On Disease Prevention, Oprah!

Wednesday, February 16th, 2011

McCarthy and Winfrey: Scaring the Public About Vaccines

An op-ed in the February 2011 edition of SCIENTIFIC AMERICAN laments recent increases in pertussis, or whooping cough, in California, suggesting the trend may result from parents’ growing reluctance to permit their children to receive vaccines. For those of us not familiar – yet – with whooping cough, the magazine describes the disease as “known…for the distinctive sound its victims make when gasping for air after a fit of paroxysmal coughing…”

There’s nothing wrong with a good measure of healthy skepticism about even long-proven medical treatments and procedures. But why do so many people favor fear over solid science and their own pediatrician’s recommendations?

Here’s one reason: When the television icon of the past quarter century and her Hollywood autism spokesmodel say it’s so, many parents can’t help but agree there must be some, any kind of connection. After all, goes the TV wisdom, a child is perfectly healthy before the vaccine, and just look now.

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John
Seng

Want Faster Cures?

Tuesday, December 7th, 2010

This past Friday, Spectrum VP Lissette Capati and I spoke with Cecilia Arradaza, who is Communications Director of FasterCures, to confirm our pro bono support to promote as well as help manage media coverage at the group’s upcoming “Partnering for Cures” summit in New York next week. logo_fastercures

Medical research innovators and investors will convene Partnering for Cures, December 14-15, New York City at the Grand Hyatt Hotel. Right now, we’re estimating more than 600 participant medical research-focused innovators and investors. This is truly a dynamic meeting, an uncommon vortex of everything collaborative in diverse parties pooling their heads, resources and ideas to develop better treatments for diseases with sorely unmet needs. It’ll be crowded, but there’s still some capacity.

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John
Seng

Terrible Tuesday?

Monday, November 1st, 2010

Will tomorrow’s mid-term elections spell doom for House Democrats and open the door to potential repeal of the Patient Protection and Affordable Care Act?

In the past two days, I decided to quiz a couple of experts who also happen to be friends: Marsha Simon and Tim Donner.

Marsha Simon, PhD, Health Policy Expert President, MJ Simon & Company

Marsha Simon, PhD, Health Policy Expert President, MJ Simon & Company

Marsha is a former Ted Kennedy staffer and prominent health lobbyist whose firm MJ Simon & Company partners with Spectrum. She is an expert in legislative strategy, nonprofit management, and public policy research, with over 20 years of experience, including nearly a decade working for the United States Senate.

Tim Donner is a film-maker, baseball radio show host, and President of One Generation Away, an independent, nonpartisan education, research and public policy organization.

John: What’s your prediction for Tuesday’s elections?

Marsha: Republicans will take the House, Democrats will hang on in the Senate, but with smaller voting margins. The Democrats will run for cover and avoid major legislative initiatives for at least the next two years.

Tim: Republicans will take the House. This wave is extraordinary, given that we’re going to see two waves in a row. It’s never happened before in U.S. politics, with the second wave reversing the first. There’s a decent chance the Senate could topple, too. Generally, in a wave election, both Houses go.

John: If people are angry with the new health care reform legislation, why?

Tim Donner, President, One Generation Away

Tim Donner, President, One Generation Away

Marsha: The anger is more with a sense of misplaced priorities than with the specific provisions of the health reform bill. I think voters are angry about the state of the economy and do not see the relevance of health reform to their immediate problems. Health reform is based on employer-based, private insurance – especially the early market reforms such as coverage on parents’ policies for young adults – and those without a job have none.

Tim: People are extremely unhappy with the new health care legislation, most of which they cannot understand. And it’s an impediment to increasing unemployment. Companies have cash, but they remain on the sidelines, because they don’t know the cost. (more…)