Author Archive

Megan
Lustig

Sweet Victory, One Child at a Time

Friday, September 23rd, 2011

Last week, Frannie Marmorstein and I were thrilled to head up to New York City to attend the PR News Platinum Awards Luncheon. We attended on behalf of Spectrum and GLOBALHealthPR, our partnership of international health care communications specialists, as a finalist in the “Pro Bono” category for our work on The Progeria Research Foundation’s (PRF) “Find the Other 150 Campaign”. And we won! This recognition, among the best of the best in the industry, was an honor for everyone involved in the campaign, and hopefully it will inspire others in the industry to leverage global collaboration for a cause they are passionate about.

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Megan
Lustig

Stem Cells Break Through in 2010

Tuesday, January 4th, 2011

Last week, The Chart on CNN.com took a look at the most important health stories of 2010. From first lady Michelle Obama’s Let’s Move Campaign to Food Safety, The Chart featured the latest, but not necessarily the greatest, health highs and lows of the year. Dr. John McDonald, director of Kennedy Krieger Institute’s International Center for Spinal Cord Injury (a Spectrum client), authored a guest post on what many have believed to be “an impossible feat”. We can change the world with human embryonic stem cells describes why the first human embryonic stem cell trial in the world is an incredible scientific milestone, and represents true progress for patients with spinal cord injuries. While stem cells have been surrounded by controversy, Dr. McDonald’s post underscores the fact that we could be witnessing a turning point not only in science, but in the human lives that this therapy could change forever. If that’s not a health story of the year, I don’t know what is.

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Megan
Lustig

Inspiration for Rutgers’ Eric LeGrand: Because Impossible is only a Word, Not a Reality

Tuesday, October 19th, 2010

nothingis1As the wife of a current collegiate football coach who played in college, I know that there are few words to express the emotions surrounding Rutgers’ defensive tackle Eric LeGrand’s horrific injury this weekend. My heart goes out to Eric’s family and the Rutgers community – I sat through so many games when if my husband (boyfriend at the time) even slightly hesitated after a hit, I panicked, and yet the worst he suffered was a broken leg. In Kieran Darcy’s ESPN article about the incident, he quotes Rutgers’ head coach Greg Schiano:

“Eric, his family and the Rutgers football family believe he will recover,” said Rutgers coach Greg Schiano. “We ask our fans and the entire Rutgers community to believe and pray for Eric as he begins the recovery process.”

For many football fans, this may bring back memories of the injuries sustained by Penn State cornerback Adam Taliaferro, or Buffalo Bills player Kevin Everett. Adam and Kevin, however, are back on their feet.

People may have varying opinions on the attributes of a successful athlete, but it is hard to deny that discipline, dedication, and a tremendous work ethic are at the core of what it takes to succeed. So when athletes face the life-altering challenge of paralysis, they depend on these attributes when faced with a completely new, unexpected training regimen. Because of Eric’s accident, I would like to offer the story of Matt Courson as a source of inspiration for Eric, the Rutgers community, and anyone else affected by paralysis. According to Matt, impossible is only a word, not a reality.

Matt Courson’s story is one of an inspirational and motivated All-State selection, 8AAA Pitcher of the Year, and collegiate pitcher who has faced the same life-altering challenge as Eric – paralysis. Yet Matt’s story is about more than his dedication and remarkable recovery. His outlook on life burns so bright that everyone he meets is taken with him, and he says that when he speaks and people tell him that they were helped by his story, “it is better than any strike-out, bigger than any baseball game you can play.” And what is phenomenal, is that when Matt graduates from college this Spring, he will get out of his wheelchair, and walk across the stage.

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Megan
Lustig

Find the Other 150

Wednesday, August 18th, 2010

Today, Amanda Sellers shared the results of our global awareness campaign at the 2010 Centers for Disease Control and Prevention (CDC) fourth annual National Conference on Health Communication, Marketing and Media. The “Find the Other 150″ campaign “found” 24 percent more children with a rare, fatal, and rapid aging disease called Progeria, a disease affecting less than .01% of the world’s population. In creating and carrying out the campaign for The Progeria Research Foundation, Spectrum collaborated with partner firms in 10 countries through GLOBALHealthPR, the largest independent public relations group dedicated to health communications worldwide. Reaching out to media and medical professionals with culturally relevant and strategic communications methods, as well as using online tools such as the campaign website (www.findtheother150.org), the awareness generated more than 20 inquiries to PRF about potential children with Progeria in six months. From these inquiries, 13 new children with Progeria were identified from seven countries, increasing the total number of children known to have Progeria worldwide to 67 (a 24 percent increase). Watch below to hear more about the campaign from Amanda Selllers and click here to view the campaign poster and press release.

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Megan
Lustig

Autism, Divorce, and the International Meeting for Autism Research

Wednesday, May 26th, 2010

Chances are you’ve heard the numbers – according to the Centers for Disease Control and Prevention, 1 in 110 children in the U.S. have an autism spectrum disorder (ASD). And if you’ve heard those numbers, you also may have heard the widely referenced statistic that 80 percent of parents of children with an ASD end up getting divorced. However, research presented by our client, the Kennedy Krieger Institute, at the recent 2010 International Meeting for Autism Research in Philadelphia debunked this statistic, finding that autism has no effect on family structure.

So why are these findings important to the autism community? I’ll let you click here to listen to lead study author Dr. Brian Freedman discuss these findings, and provide his research team’s first-hand perspective. So many people – from fellow researchers at the meeting, to outlets including WebMD, Newsweek’s Human Condition Blog, HealthDay, NPR, and the LA Times Booster Shots Blog – expressed interest in this study, because it demonstrates that families don’t have to receive a diagnosis of autism and divorce at the same time, and it underscores how families are resilient when faced with the challenges that raising a child with an ASD may bring. (more…)

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Megan
Lustig

Olympic Champion and Kennedy Krieger Empower Children with Special Needs

Tuesday, February 2nd, 2010

On Monday morning, the Today Show featured a story on I-Skate, Dorothy Hamill’s Adaptive Skating Program at Kennedy Krieger Institute.

Dorothy Hamill’s Adaptive Skating Program is part of the physically challenged sports programs at Kennedy Krieger Institute, and provides children with a unique opportunity to get involved with physical activity, which improves their health, as well as providing a chance for important social interaction with their peers.

The Spectrum team worked with Today Show producers and Kennedy Krieger Institute to secure this story on I-Skate, making for a wonderful, heartwarming “Good News” story to watch on a Monday morning.

This is just one example of inspiration and motivation coming out of the Kennedy Krieger Institute, and demonstrates how people at Kennedy Krieger are empowering children with disabilities.

Click here to see Dorothy skate with children in the program and the joy they experience on the ice! (more…)