Archive for the ‘Progeria’ Category

Frannie
Marmorstein

“Success is stumbling from failure to failure with no loss of enthusiasm.” – Winston Churchill

Thursday, December 6th, 2012

Yesterday I was browsing Popular Science and found an interesting article, Science Confirms the Obvious: Rejection Can Make You More Creative. The article discussed new research being conducted by a team from Cornell and Johns Hopkins that found people who handle rejection in a proper manner, can experience heightened creativity and even commercial success through an ability to avoid mainstream thought and pursue their own creative solutions to problems.

In summary, rejection or failure forces people to be creative and think outside of their “box.” While this sounds pretty obvious, I started thinking about this in terms of scientific research and advancement and how, as a community, we need to be embracing this concept. The scientific community continually wants to publish and promote positive study results, but does this really benefit the advancement of science? What if some of our biggest rejections could lead us to a greater success? (more…)

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John
Seng

Strategic Communications Accelerating Medical Research Forward

Tuesday, June 28th, 2011

After receiving the Genetic Alliance “Art of Reporting” Award this past weekend and as the BIO 2011 conference unfolds this week, I wanted to share my thoughts on rare diseases research and how public communications can play a bigger role.

In 2003, Spectrum was approached by the founders of the Progeria Research Foundation (PRF). At that time, we had not heard of progeria, but we weren’t the only ones. People don’t think about rare diseases a lot, but 10 percent of the world’s population has one. And promoting research of rare diseases can benefit everyone.

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John
Seng

Winning For Rare Disease Research

Thursday, March 10th, 2011

I learned several weeks ago that I’m to receive the Genetic Alliance “Art of Reporting” Award in June for Spectrum’s work on behalf of The Progeria Research Foundation‘s (PRF) “Find the Other 150”  campaign. I want to publicly thank Genetic Alliance for recognizing this campaign and our commitment to such a rare disease.

Progeria is a rare, rapid aging disease in children and our client, PRF, is working to find a treatment and cure for this disease. As of October 2009, experts estimated that there were approximately 150 unidentified children with Progeria around the world. Spectrum and our global partners, GLOBALHealthPR, teamed up with PRF to launch a global communications effort to find these 150 children.

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Frannie
Marmorstein

Fountain of Youth Discovered?

Tuesday, November 30th, 2010

The reversal of aging has been a recurring theme in fictional movies, books, and television shows, but is there a possibility that this fiction could become a reality? Remember Benjamin Button, Mork and Mindy, Tuck Everlasting and Twilight?

A colleague of mine passed along an interesting article yesterday; a group of researchers at Harvard-affiliated medical centers have partially reversed the aging process in mice. The mice were genetically manipulated to age faster, and then treated with gene therapy to lengthen telomeres — compounds found at the ends of strands of DNA — which reversed age-related problems such as decreased brain function and infertility.

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Lauren
Holbrook Harris

Taking a Rare Disease to the Masses: Progeria featured Across Major Networks

Friday, September 10th, 2010

What a morning! Two of the major news networks featured stories on one of the world’s rarest diseases, Progeria, which our longtime client, The Progeria Research Foundation (PRF) is striving to treat and cure.

Tonight, Barbara Walters returns with her special, When Seven looks like 70…A Race Against Time for Three Young Girls. Tune in to watch, and click here to make a difference in the lives of children with Progeria. To get a sneak peek at tonight’s special, watch Walters on yesterday’s episode of The View.

Megan

Megan

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