Archive for the ‘doctors’ Category

Ricki
McCarroll

Rheumatoid Arthritis…It Happens Young Too #WorldArthritisDay

Friday, October 12th, 2012

According to the experts…Rheumatoid arthritis (RA) affects about 1.3 million people in the United States and pops up typically between the ages of 30-60, with women accounting for three times the number of men living with the disease.

Hmmm. Ages 30-60 you say? Really? How about 19?

Since it is World Arthritis Day, I thought it would be the perfect time for a virtual coming out party and the opportunity to share a personal story with all of you Full Spectrum Blog readers!

So here’s my tale (the cliff notes version):

  • 2000 – It’s genetic. My mom was diagnosed with a combination of RA and Lupus.
  • Early 2006 – I started exhibiting symptoms indicative of RA.
  • Summer 2006(Age 19) Diagnosed with RA - After a slew of diagnostic procedures, including antinuclear antibody (ANA) and rheumatoid factor (RF) testing, I was diagnosed with RA and the genetic indicator for Lupus. Funny enough (or not), all of my tests came back negative and to this day, nearly six years later, my ANA and RF are still negative. But due to family history, the diagnosis was solidified.
  • 2006-2010Post Diagnosis & Treatment - I changed my diet to exclude nightshades, began taking NSAIDs and Plaquenil (hydroxychloroquine), and eventually got to a place where I effectively managed my symptoms and disease on the same dosage. For almost four years, I led an active lifestyle, including multiple snowboarding adventures, three years as a choreographer in a dance company and a trip around the world.
  • 2010 – 2011The Flare Up – Common in RA patients, sometimes the drugs you’re taking don’t work anymore. In the summer of 2010, we had to change up my treatment to something more drastic. So the docs brought out the big guns: steroids to control the pain and prevent joint damage, along with methotrexate, a low-dose chemotherapy. (more…)

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Luke
Dickinson

Supreme Court Upholds the Affordable Care Act

Thursday, June 28th, 2012

President Obama signs the Affordable Care Act into law in 2010

Amid great anticipation, fanfare – and even a belly dancer – the Supreme Court of the United States (SCOTUS) announced a 5-4 ruling to UPHOLD the constitutionality of the Affordable Care Act (ACA) – the health care reform legislation passed by President Obama in March 2010.

Question of Constitutionality

The ruling hinged on the question of constitutionality of the law; particularly the clause that would require Americans to purchase health insurance. The Court ruled that while it is unconstitutional for the government to command citizens to purchase insurance, as a part of its power to regulate commerce between states, five Justices agreed that Congress DOES have the authority to levy a tax on those who do not purchase insurance. As cited in Footnote #11, on page 44 of the 193 page ruling, this is laid out as:

“Those subject to the individual mandate may lawfully forgo health insurance and pay higher taxes, or buy health insurance and pay lower taxes. The only thing they may not lawfully do is not buy health insurance and not pay the resulting tax.”

In a move that came as a surprise to many, Chief Justice Roberts sided with the liberal element of the Court in voting to uphold the mandate as a tax. In his lengthy ruling, Roberts noted that “The Affordable Care Act is constitutional in part and unconstitutional in part,” while adding that the decision “makes going without insurance just another thing the Government taxes, like buying gasoline or earning income.” As experts have pointed out, the ACA’s primary provision is now more of an invitation to purchase insurance – as opposed to a requirement – with an, arguably light tax penalty for those who chose to go without.

States Access to Medicaid

While the ruling that the individual mandate is constitutional made moot many of the other constitutionality questions surrounding the law, the Court did rule on the Medicaid provision that required states to comply with new requirements or risk losing funding. In a complicated decision, that favors the supporters of states rights, the Court ruled that the provision is constitutional if states would only lose access to NEW funds if they chose not to comply with new requirements, rather than lose access to all Medicaid funding.

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Ricki
McCarroll

Social Media & Health Care, Battle of the Ages

Monday, April 30th, 2012

Last week a colleague sent over a comic (at left) illustrating a generation even past mine. Technology has changed everything – the way we communicate, receive information and push out information about ourselves and what is plaguing us at the current moment, with an ever apparent #Really hashtag.

As we are all becoming aware of, there is not a place to hide when it comes to social media. Even if your organization isn’t using social media, people are having conversations about you…without you. The health care industry is no exception, even though there continues to be a patient privacy issue within platforms like Facebook and Twitter.

In a recent study released by PricewaterhouseCoopers surveying 1,060 U.S. adults, 42 percent of consumers have used social media to access reviews of treatments or physicians while 25 percent have posted about their health experience.

When broken down by age, 54 percent of people between the ages of 18-24 and 41 percent of people between the ages of 25-34 post about their health care experiences on a social media channel, while only 14 percent of people aged 35-44 use social media to communicate about their health care experiences.

In MedCity News, it is pointed out that although consumers are trending toward social media for health care answers, the health care industry is lagging behind in their reach. This is true, as “two out of three health providers and insures allow individuals to post on their Facebook walls, but fewer than one in three allow the same in the pharmaceutical world.” (more…)

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Kelly
Barrett

BDI’s Social Communications & Healthcare 2011: Empowering employees to ‘play’ with social media

Tuesday, July 19th, 2011

Last Wednesday, I had the pleasure of attending the Business Development Institute’s Social Communications & Healthcare conference in New York City. It was the third year that BDI has put on the conference but one of the first times the event has included such robust case studies from industry leaders.

It is unfortunate that in pharma, we really don’t have many social media case studies to look at, yet. And this isn’t just because social media is new, because really, it’s not that new anymore (and what’s new today is old tomorrow). The problem lies more in the fact that so many companies and agencies are doing innovative stuff that they aren’t yet allowed to disclose. Here at Spectrum, a number of our progressive social media-related initiatives are highly sensitive and stay confidential. However, in the meantime, it’s inspiring to see all the ways people are finding to best socially communicate.

BDI Wrap Up from Zemoga on Vimeo.

(Pixels & Pills covered the event and they provide a ton of great video interviews that you should check out. And New Millenium Research & Consulting has photos up on their Facebook.)

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Anthony
LaFauce

Can You Hear Me Now: FDA Still Not Talking

Friday, April 1st, 2011

Speak no evil

For the last few months everyone in the PR/marketing industry has been waiting for a few words from our friends at the FDA. I personally wrote about the FDA’s inability to come to terms with a social media policy back in December.

Last year the FDA made a clear statement to the world with this announcement: Our goal is to issue one draft guidance that addresses at least one of these topics during the first quarter of 2011, but we cannot comment any further at this point as to exactly when any draft guidance will issue or any specific order in which the topics will be addressed. The public will be notified officially when any guidance is issued via Federal Register announcements.”

(more…)

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Kaitlin
Doody

What Health Communications Cannot Do

Thursday, March 3rd, 2011

Last Tuesday, I attended the American News Women’s Club’s first Professional Pursuits Series program. Guest speaker of the night, Molly Mahoney Matthews, founder, CEO andPresident of The Starfish Group, is a seasoned health communication professional who has seen nearly every corner of the healthcare PR space – she has worked agency life; led communications for a hospital; built, managed and sold her own firm; and is now president of her second communications company.

While Molly was fielding questions after her presentation, I asked her to describe what healthcare communications is in two sentences. Like many PR practitioners, I have a hard time explaining what exactly it is I do each day, so I thought this would be a good question to ask of a woman who has been in the field for 25 years.

Molly gave a brief answer about influencing health behavior, but really recommended that I check out the NIH’s “Making Health Communication Programs Work” for a solid definition of healthcare communications. As a budding health and science PR professional, I knew that I should check out this resource.

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