Posts Tagged ‘Chronic Disease’

Megan
Lustig

Sweet Victory, One Child at a Time

Friday, September 23rd, 2011

Last week, Frannie Marmorstein and I were thrilled to head up to New York City to attend the PR News Platinum Awards Luncheon. We attended on behalf of Spectrum and GLOBALHealthPR, our partnership of international health care communications specialists, as a finalist in the “Pro Bono” category for our work on The Progeria Research Foundation’s (PRF) “Find the Other 150 Campaign”. And we won! This recognition, among the best of the best in the industry, was an honor for everyone involved in the campaign, and hopefully it will inspire others in the industry to leverage global collaboration for a cause they are passionate about.

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John
Seng

Strategic Communications Accelerating Medical Research Forward

Tuesday, June 28th, 2011

After receiving the Genetic Alliance “Art of Reporting” Award this past weekend and as the BIO 2011 conference unfolds this week, I wanted to share my thoughts on rare diseases research and how public communications can play a bigger role.

In 2003, Spectrum was approached by the founders of the Progeria Research Foundation (PRF). At that time, we had not heard of progeria, but we weren’t the only ones. People don’t think about rare diseases a lot, but 10 percent of the world’s population has one. And promoting research of rare diseases can benefit everyone.

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Anthony
LaFauce

Being Part of the Story on the Screen: 3rd Annual Genetic Alliance Gene Screen

Friday, June 24th, 2011

Last night Spectrum had the privilege of hosting a Q&A session for the Genetic Alliance’s Gene Screen and I was honored to attend The Gene Screen, an annual review of films and shorts focused on health and genetics.  The session wasn’t long, around an hour and a half, but it was filled with the type of emotion normally reserved for big budget ‘tear jerkers.’

The list of films varied from personal stories like “Me and Antoine B.” and “Aiden’s Journey: Awareness and Hope” to more traditional Public Service Announcements like “No More Hand-Me-Downs: Research Designed for Children.” But the one thing they all had in common was their strength.

Strength isn’t something that often comes to mind when you think about the process of making a movie, but I was moved by the sheer force of will it took to make some of these films. Film production alone is a difficult, draining process that forces individuals to work long hours, editing and poring over meticulous tasks. Add to that the emotional burden of working on material as powerful and heartbreaking as the stories of these genetic disorders, and its truly remarkable the films were completed.

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John
Seng

It’s Your Wake-Up Call

Friday, March 4th, 2011

Are you or are those you know at risk for diabetes? It’s easier than you think to find out.

American Diabetes Association Alert Day is this March 22. As chair of the National Capital Community Leadership Board for ADA, I’ve deployed all my social media skills to get the word out, and that includes this contribution to The Full Spectrum Blog. (I need to set a good, virtual example, you know, and Spectrum has a great, long-standing relationship with ADA.)

It’s a one-day “wake-up” call asking Americans to take the Diabetes Risk Test to find out if they are at risk for developing Type 2 diabetes. I took the test and fortunately, my risk is low, as you can see in my report here. (There’s even a button to click to listen to the risk report.)

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Molly
Poarch

The Team Approach to Breast Cancer Care

Monday, May 17th, 2010

Upon learning that she has breast cancer a woman is immediately faced with a series of key decisions and a challenging road ahead. Often, her physician plays an important role in helping her navigate the many stages of treatment that may involve surgery (such as a lumpectomy or mastectomy), radiation and chemotherapy.

In the face of so many difficult emotional and physical decisions, many women do not immediately think about breast reconstruction surgery. And, unfortunately, neither do their physicians.

A 2007 study from the University of Michigan Medical Center shows that nearly 70 percent of women who are eligible for breast reconstruction are not fully informed of their options related to surgery. The study found that “most general surgeons do not discuss reconstruction with their breast cancer patients before surgical treatment. ” However, when this discussion does occur, it significantly impacts a woman’s treatment choice. In fact, she is more likely to choose mastectomy.chronic_disease

For many women, if they are informed about their choices, they can choose to have a mastectomy and reconstructive breast surgery at the same time. For the patient, this means less surgery, which cuts down on hospital time and recovery time—significant factors for anyone, but especially a cancer patient.

Recently, Spectrum helped the Society for Women’s Health Research partner with the American Society of Plastic Surgeons to host a roundtable discussion with members of the media, breast cancer survivors, patient advocacy organizations and medical professionals to discuss the importance of cancer care professionals working as a team and presenting a woman with all of her options at the outset of her diagnosis. They call this the “Team Approach” to breast cancer care.

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Spectrum

Chronic Monday: Chronic Care – A Call to Action

Monday, March 22nd, 2010

The statistics on chronic disease are staggering. Today more than 70 million Americans ages 50 and older suffer from at least one chronic condition – that’s 4 out of 5 older adults. What’s worse is that approximately 11 million older adults live with 5 or more chronic conditions.

Last week, I traveled to the Windy City to attend “Aging in America” – the annual conference of the National Council on Aging (NCOA) and the American Society on Aging (ASA). The week-long conference is the most comprehensive multidisciplinary conference on aging, including more than 600 workshops and poster sessions and attracting approximately 4,000 industry experts. As a first-time meeting attendee-yes, I even had a special badge-I wasn’t sure what to expect. (more…)

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